Hi! So it’s 4:30 am…steroids got me awake! I thought why not do a video update….I mean you all can see my hot mess, no sleep in the last 21 hours self! And in the spirit of keeping it real, this video is unedited and done in one take! Enjoy
Side note….The dogs are in here with me and when I watched this back I heard that Fabio, our grey American Staffie, was serenading you with snores! I guess I tune it out, but he was rocking it!
Here is the video followed by a pic of my staffie!
It has been a minute since I’ve updated. I feel I just repeat the same things over and over, but I know a lot of you want to know how things are going. I am working on a few different posts and would love ideas on what you want to know. If you have a question, leave a comment. I plan to do a Q and A post soon!
This past Thursday I had my 9th Taxol. It went much the same. The doctor has been giving me an extra bag of fluids each treatment which seems to help my energy levels the day of treatment and the day after. I came home and slept for several hours, but then slept zero Thursday night. The lack of sleep does a number on me emotionally. In addition, the medications mess with your hormones which too makes me emotional. There are times I feel like crying for no reason at all. I feel like if I start crying I may never stop. This has been a struggle the last two days.
The expected pain has started to set in and I fully expect tomorrow to be the worst day of it. That seems to be the routine. By Tuesday I am usually feeling much better and ready to tackle it all over again by Thursday. Okay, that’s a lie. I am never ready for treatment day….Just when I start feeling better I have to get knocked down again.
I keep telling myself I have been doing this since October and there are only three weeks left, four counting recovery, but it feels so far away. I am tired. Not just physically, but mentally, emotionally. I want so bad to be done….but then a whole new scary journey begins. I know what to expect now with chemo, but what will radiation bring?
I feel I don’t talk about the emotional struggle enough on here. My family and close friends see it, but I don’t share enough about it. The is almost as much about the mental fight as the physical, if not more. I want to quit. I want to feel normal. I want life the way it was in July of 2020 when there was nothing wrong with me. The reality is, my life will never be the same. I will forever be post-diagnosis Carrie. My families lives will never be the same. They will all have gone through this with me. It’s hard on them. They put on a brave face for me, but I know they hate it and are tired too.
So how do we make it? God! We pray. We lean on our friends and family when we can’t support ourselves. We keep a positive attitude and find the good in whatever we are dealt. When I can’t see positive, someone else helps me find it. We keep a sense of humor about it all. Sometimes people may be put off by us laughing or joking about my cancer, but laughter helps. Sometimes laughing is all we can do to get through.
My medical team at Texas Oncology is great. They are always positive, but real. They tell me what to expect and support me as those things begin to happen. But mostly, they are awesome because they get me. I feel comfortable being honest and telling how I’m doing. I know they won’t get upset if I didn’t drink enough water that week or lost some weight. If I say I was so mean this week to my family, and they assure me it’s the chemo making me that way. They are awesome because they laugh with me when I crack stupid jokes….or wear silly shirts! They cheer me on and are just as excited as I am that my chemo is almost over. It will be weird not seeing them every week! But they swear after this they never want to see me again (at least in the office).
I have said so many times that sometimes it’s okay to not be okay. This week, and over the past five months, there have been moments of not being okay. I want to thank those who have listened to me, cried with me, and picked me back up. For reminding me what I have already overcome and told me I only have THREE MORE TREATMENTS! 5 months of chemo done, ONE to go!
Hello from Alaska, I mean, Texas! It is cold here. And I am not talking cold as in hovering around freezing, wear a sweater, cold. I am talking about the coldest temps Texas has seen in a century or more. This morning we hit zero! Texans are not used to this. We have snow on our coastal beaches! Sadly, our energy infrastructure was not prepared either and many millions of my fellow Texans are without power and have been for days…in this frigid cold it is so dangerous and my prayer is that electricity can be restored and pipes will thaw without bursting!
Cotterville, so far, has weathered the first round of snow well. We picked up about three and a half inches of pure powder snow on Sunday night into Monday. The boys have gotten out for short spurts to play. We have not lost power or water and for that we are grateful! So many have…
I finished AC chemo two and a half months ago (wow! Doesn’t feel like it has been that long ago) I was told that once AC chemo was done my hair would begin to grow back. Within t he last few weeks we have finally seen something happening!
Today, I took my beanie off and Chris said, your hair is sticking straight up! So, of course, I grabbed my phone to use it as mu mirror and to snap a few pics.
We still can’t tell color or if it will be curly, but I’m holding out for light curls. Regardless, It is a beautifully “bad” hair day!!!
Stay warm over the next few days! Praying I can still have my infusion on Thursday! Five more Taxol to go!